A few hours of your time a day can make a world of difference to a 39yo with secondary progressive MS. NB: I may be slow responding while currently in an exhaustion state, as falling asleep all over the show really makes it hard to do anything other than must dos to get through the day.
I apologize in advance, please know how frustrating i find it missing out on get opportunities ur offering me.
• If u make my bed, it won't be something I end up leaving undone for days as the hospital bed is too heavy for me to lift.
• If you pre open my plasters it won't be something that frustrates me to tears because i can't get a grip to do so & then rip the plaster instead.
• If ur here when I (try hold onto my independence &) shower I might ACTUALLY feel safe enough to do so.
I'm currently down to just 3 a week for safety, prevent getting stuck unable to get out of the bath an extra 15mins sometimes or struggle to dry half my body or wait until mid afternoon when I have the confidence to try on my own.
• If u supervise putting up my hair AFTER a shower I won't need to half strip to do it before so I can open the hair tie.
•If you fold my washing it won't sit in a pile on the couch until I next need to wear it.
• If you clean my bathroom it won't take me upto 3 days trying (or just wiping the dust out & pretending i did).
• If u vacuum my house it won't take me weeks finding the energy to do it room by room.
• If u change my sheets it stops me avoiding it possibly for months before asking (in what feels begging) someone to come & do it for me, as pwith the hospital bed I can mo longer even try.
• If u do my dishes I might eat better knowing I didn't need to air wash them, as I can't submerge my hands in hot water.
• If u do food prep I might go back to eating 3 meals a day.
• If u shop for my groceries I wouldn't order a bunch of things I can't afford & don't need just to make a delivery charge worthwhile.
If u do all these things I wouldn't be in tears rewriting my ad yet again feeling so incredibly low & useless, even knowing some of these things aren't my fault or in my control.
I spend weeks using my energy trying to survive these basic tasks, instead of having a (tiny bubble) life and doing something enjoyable like watching the rugby game, an episode of a show, or heaven forbid have the time & energy for an actual movie e-date with a friend.
My body has returned to a state of exhaustion I sit down after breakfast (help leaves)/liquid dinner, fall asleep for 2 1/2 hours and not realise it even happened until I notice time marched on without me.
Ultimately under more pressure, still trying to complete these basic tasks at 3 or 4 a.m. My neurologist says there's nothing medically that can be done, just wait it out, focus on the reasons I'm exhausted, build better sleep habits…do better sigh --------------------------- I NEED u to be: ?
?MUST BE FULLY vaccinated (including Covid-19 Boosters & annual flu - I can help with/pay for) ?
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(mature) FEMALE so I feel comfortable as i lose further independence & rely on u more for certain tasks i never saw needing help with.
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?Have a full driver's licence, access to a car with current WOF, Rego & insurance!
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?OK with a dog (u ignore as in training to be my service dog).
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?Able to provide a recent NZ criminal records check (free here) at returning items back to where they belong so i stay aware of my space without needing to recheck frequently.
¦ Please provide a CV & tell me all about your wonderful self _________________ LONG TERM DREAM TEAM OF 3 OR 4 - I thankfully have filled the Monday-Wednesday Permanent part-time position.
¤ Thursday - Sunday AM 60-90minutes per day permanent part-time NEEDED.
¤ Thursday - Sunday PM per day (funding pending) permanent part-time.
Weekly or fortnightly everyday covered makes such a difference in my ability to return to have everyday life/activities again after we are done starting the day safely.
¤ 2 Causals.
• One Thurs-Sun • INCREASELY URGENT A closely located causal who might be available short notice for those days/nights my internal parts win over my ability to move quickly enough I can avoid making a soul destroying mess of myself/clothing & at least one small room in the house.
Needing an additional shower when im already tired, have probably spent 30 minutes or more cleaning, including trying to be safe with just babywipes.
But I have discovered after 1, 2 or even 3 showers' (over the bath), im still not clean enough to want to be in my own skin.
__________________ I'm a near housebound 39 year old immuno-suppressed female, dealing with increasing symptoms of secondary progressive MS & big life changes I am not mentally prepared for far too soon.
I need to hear from you Anna